Posts that are Didn’t fit anywhere else-ish
I haven’t quite been able to write recently. I miss it. To write, rx I need safe and uninterrupted solitude within which to unspool whatever novice shreds of craftsmanship I have. I can be surrounded by people, cure as in a coffeeshop or library or hallway — and sometimes I prefer that — but I need to be safe from disturbance so that I don’t need to keep on anxiously scanning and saving mental stopping points mid-text, and always poised to defend my space.
At the same time, I can’t write unless I have poured experiences into my life so I have something to pour out onto the page. As a mild extrovert, I fill the garden of my soul with richness by rubbing up against the world, plunging into the universe of people. Experiences, thoughts and sounds and bustle; organic matter tumbling into a bin of moist heat, crumbing into peat, a sweat-soaked fertile soil for growth. Newspaper clippings, soggy remains of texts I’ve read; eggshells of fragmented conversations, flashes of instinct; observations.
And then I need the quiet rains, and the small stillnesses, where the budded worlds can unfurl through my fingers. And I rummage through them, pricked by thorns and scratched by branches, pruning, propping, pushing, plucking — learning how to garden, learning how to wait until the fruit is ripe, learning how to ferment something into a bubbling sweetness that is more than all that it has taken in.
It’s simple. Life, and sweat, and time — and willingness to let chocolate-bitter notes swirl into the complexity. I bottle bustle in my wine; I need the stillness, but also the full-filled mess of a lively costumed brawl, and I need solitude. I need to run, and then I need to sprawl onto my back under a grassy sky, soak-drenched and gasping in great draughts of wind. I need the grit of rising early morning after morning plunging into soup-pot days boiling with mirepoix and vigor, and I need the lazy nights and mornings with sheets whipped cool around me, only rising drink slowly from cups of milky coffee piled high with pillowed foam.
I haven’t played with words like that for ages. Alliteration (“pruning, propping, pushing, plucking,” “bottle bustle”) and rhymes with delayed fulfillment (“Life, and sweat, and time” holds out for the word “wine” for as long as I can spool it), metaphors (composting, brewing, cappuccino foam and bedsheets), and other forms of wordplay (“full-filled/fulfilled” and “costumed brawl/costume ball”) – I don’t plan this; I just write it, and when I look back, I see those techniques in hindsight. I need to learn the discipline of making this a more skillful and subtle art, so I will leave these words as unrevised right now, and someday I may be able to shape it into better-ness. It’s still too much; I still write with a heavy hand that tries to grasp its way into the world.
My writing, at its best, reaches for something I’ll never hold within this world, a longing that will linger past the edge of my ability. Fecisti nos ad te et inquietum est cor nostrum donec requiescat in te. I ache to share the world as mystery, but how can I? C’est impossible. Live in a mystery, and words are too pale and poor to transmit more than garbled messages incomprehensible to anyone who hasn’t shared it. And those who’ve shared it know: the mystery is always yours alone, and only the transcendent third can span the gap between you. And so I learn to breathe in a great ocean that drenches in solitude; and so I learn to reverence communion, daß zwei Einsamkeiten einander schützen, grenzen und grüße.
I need my space to write; I cannot cross that space into the world you read from. And that’s hard for me, because there’s so much that I want to share. I want to share the worlds that have filled me with wonder — realms of knowledge, circles of friends, communities of practice, safe homes and life-changing schools and great mouthfuls of crisp-spicy food and little moments of experience. And all I can do is open doors into those worlds, and usually I can’t even do that; all I can do is wave my hands around and promise they exist, and that they’re well worth finding. And so I write.
I don’t know what I’m writing any more, or why I’m writing. I write; the images run out, I finish writing, and I wait and wonder. I suppose that’s what I do, in this particular kind of writing. I do a lot of other kinds as well, but none that feel so much like blind trust as this kind of writing — whatever “this kind” is.
And so we write, and so we wait, and so we work — and our waiting does not excuse us from our working, nor does our work excuse us from our waiting.
And with that, it’s time for me to plunge back into the world again.
By the way, gynecologist the whole baseline sound-making anxiety thing? It works the other way, too.
I’m an electrical/computer engineer. I like making embedded systems, which are tiny computers that do tasks while responding to the outside world. (I promise this is relevant. Stay with me here.) There are two (basic) ways for embedded systems to handle external input: they can have polled I/O (input-output), or they can be interrupt-driven. This Calvin College page has a nice explanation for polling I/O:
Think of a game where a basketball player is asked to make as many free-throws as possible in one minute, but the clock is down the hall in another room. The player must run down the hall and check if the minute has passed, and if not, go back to the gym and try to make another shot, then run down the hall to check the clock and run back to take another shot. The player spends much of the time simply checking (polling) the clock.
But wait — what if the basketball player can hear? And if the clock has a loud buzzing alarm? Then they’re fine, and can keep taking shots until they hear the BZZZT! that tells them to stop. This is called being interrupt-driven, and it’s such a gift — I’m stunned how much my hearing friends take this for granted. They can keep shooting basketballs, all the time. They can go right about their business, confident they’ll know when someone knocks on the door, or their food order is ready, or their kid falls down the stairs.
The deaf basketball player, on the other hand, keeps running back and forth along the hallway. I put in a periodic 1000-millisecond delay into my activity loop to stop and check things.
For instance, I enjoy cooking for friends. My kitchen is right next to my front door. At some point this fall, I realized I was constantly tense while cooking, and caught myself pausing periodically to see if somebody was at the door — because I can hear knocks on that door if I’m next to it, and very quiet, and I’m concentrating really hard. It was a totally unconscious programming loop I’d set up, and it basically said:
- It would be rude to let guests wait at the door for more than 30-60 seconds.
- Therefore, every 30-60 seconds, I will stop cooking and concentrate really hard! to check if guests are at the door.
I decided this was silly. Most of the time, guests aren’t at the door, so the vast majority of this concentration is just wasted effort.
Now I just prop open my front door if I’m expecting guests. (Yes, yes. Safety and heating/cooling bills. There are these tradeoffs.) In the long run, the better solution is getting a flashing door knocker or having a kitchen with big windows with the driveway/door within their line of sight (this is what I had last year, and it was marvelous). So, future Mel-home, you are going to have features.
Originally published in May 2013 on the Purdue SLHS Zambia Trip Blog, internist
but I also wanted to have this here.
This is a mixed reflection on events from the past week as a whole, rather than one on a specific day.
I never thought I’d be on the other side of an otoscope. Growing up with a severe-to-profound hearing loss (ototoxic drug, age 2; my audiogram plummets into no-response territory around 1kHz) I was always the kid in the booth raising my hand, the one pulled out of class for speech therapy, the one peppering the audiologist with questions and getting in trouble for disassembling my hearing aids with eyeglass screwdrivers (it turns out first-graders aren’t supposed to adjust their own hearing aids, but nobody had told me that). 2 decades later, I’m an engineering grad student, the sole non-SLHS team member in Zambia, surrounded by 13 speech-and-hearing folks whom I can pepper with questions for two weeks. Somewhere, my tiny-child self is grinning like a maniac.
Except right now I’m staring at a variant on my tiny-child self. A 5-year-old is sitting on her mother’s lap, demanding in a nasal bellow that I blow more bubbles for her; I can’t lipread any consonants in her speech. Most of the other children in the pediatric HIV center have passed, but this time the OAE screen is blinking that the girl’s cochlea isn’t responding properly; she’s failed the hearing screening. I listen as Dr. Krishnan and the other students briefly counsel the mother about following up with the local audiologist (the only one in Zambia). I wonder what the mom is thinking. The door clicks shut. “That’s how old I was when they found out,” I tell my classmates as we prep the probe tips and elephant puppet for the next kid. “That’s what my speech sounded like when I was in kindergarten.” Later, on a sunset walk, Dr. Krishnan will tell me that telling the parents is the hardest part, that they cushion the blow by spacing the tests a week or so apart to “get more detail” and to “check again,” so that there’s time for the realization to sink in and they can start to address the big unknown: what’s going to happen to my child? The ADA doesn’t exist in Zambia.
Another day. We’re at a deaf school, one of only 4 in the entire country. Students swarm through the courtyard, the little ones signing wildly, sloppily, semi-grammatically, thwacking shoulders and waving hands to get each other’s attention. They see me and break into a flurry of questions: DEAF-YOU? HEARING-AIDS, DEAF-PEOPLE-IN-AMERICA? BUT-YOU-SPEAK! And then a sign, a tapping of the nose with a hooked finger, that I don’t recognize. It’s our second visit to a deaf school, so I’m used to the irony of being our primary interpreter (it turns out that ignoring one’s interpreter from 2nd through 8th grades still leaves you with a reasonable ability to communicate in sign). I ask one of the teachers (many are deaf as well) what the mystery word means. “White-person. They never see deaf white person before.” I see the kids miming kung-fu moves – I’m also the only Asian for miles around – and laugh: “I’ve never been called a white person before.”
One teacher and I get into an extended conversation – Zambian sign is close enough to American that our rapid fingerspelling can bridge the occasional gap – and as we speed up (HOW-STUDENTS-BECOME-DEAF? MANY GET-SICK, MEDICINE DESTROY HEARING. AH, ME TOO, BEFORE-WHEN SMALL CHILD, 2 YEARS OLD IN AMERICA) I stop simcomming, I’m just signing, and my classmates are blinking at us in incomprehension. The teacher is asking me questions, amazement on his face. You’re in college? — No, I finished, now I’m getting my engineering PhD. — They allow you into college? Deaf people in America go to college? — Yes, there are even Deaf colleges where the classes are all sign language, no interpreters. I’m sorry my signing is poor, I studied in hearing schools… — How? Amazing, to see deaf person doing PhD, someday they open brain to find out how you did this, that deaf person can go to university, we are so happy to see you, to see it is possible for deaf person to do this…
Small bits of smouldering lava are crumbling inside my chest, frustration at the great unfairness of the world. Thank God my parents immigrated to America, and for a thousand other tiny coincidences that allowed me to become who I’ve become. If the best education and career I could aspire to had been the things I’ve seen in Zambia for deaf folks, I’m pretty sure I would have been a high school dropout; why waste effort trying when the highest you can go isn’t very far off the ground at all?
I abruptly realize my classmates have no idea what we’re saying, and attempt to translate; they’ve been great about relaying things to me on noisy bus rides, in thick crowds, when I’ve turned around and don’t realize someone is speaking, etc., so I’m trying to return the favor. I relay the signed conversations in our evening debrief meetings: kids arguing, teasing, joking – for the first time in my life, I’m the only one who overhears (er, oversees?) and understands these side conversations, instead of being the only one who doesn’t. Some side conversations are just kids being silly (“They’re going to stick injections in our butt!” “You’re a big crybaby!”) but others are more sobering: after getting thresholds for a high school girl, I signed to her that her hearing was better than mine. YES, BUT YOU IN AMERICA, she replied. I NEED SIT IN THIS CLASSROOM, TOO FAR-AWAY TO HEAR. I looked at the metal roof and concrete walls, which turned the place into an echo chamber, and couldn’t reply; I’d recently whispered to the professors that the lighting was too dim to lipread, that the noise was painful, and that I was going to take my hearing aids off and go outside and sign with the students because at least there I could communicate. If some of these kids got hearing aids, I told them, they would have an awful time with the acoustics; turn the lights up, get some books or fabric in there to muffle the din, or nobody will wear them.
It’s these kinds of things, I think, that have been my contributions to the team; I’m less clumsy with an otoscope now and can operate an audiometer at lightning speed, but still ask basic questions nonstop. (What are inner hair cells? So the auditory nerve is embedded in the basilar membrane? No? Oh. What’s a morpheme?) But I’m also the first non-hearing classmate most of the Purdue students have had, and I tell them about that: how my hearing aids can’t noise-cancel the crowd at the mall, how I’d thought I wasn’t understanding the first graders we were testing because I couldn’t hear (it turns out that they actually weren’t speaking English), how the tiny visual cues (shoulder shrugs, eye glances, finger twitches) made it easy to cheat on audiograms, how the ADA doesn’t magically make all jobs equal-access, how people still speak to you as if you were mentally challenged when they see your hearing aids or hear your voice. Why I sometimes just don’t care about trying to listen because it takes too much effort. Why I’d shunned assistive services from high school all the way through college (“…you may not believe me here, but it was easier to go without them.”) I’m a stickler for lipreading during meetings: use a talking stick, one person at a time, face me, face me, FACE ME.
It’s been good to get their questions too, because I take so many of my coping skills for granted. How do I pass my classes? (I read extra textbooks during lecture time.) How did I learn to speak German? (Books and a very patient German grad student who coached the inaudible consonants into my muscle memory.) Why did I like getting pulled out for speech therapy as a kid? (I couldn’t understand group conversations in the classroom, so quiet 1-on-1 time with the therapist was often the most adult conversation I had in school that week.) I apologize to them on behalf of all the future difficult kids they’ll ever work with (“we’ll think of you when we get those kids, Mel”). I ask them to please, please explain things to their patients, feed their curiosity, push them towards possibilities they may not have considered. I don’t have the emotional endurance to be a clinician, but they do – I watch them work patiently with these kids day after day – and I’m glad we’ve got these sorts of people going into the profession.
Oh. And on the engineering side, I’ve now got sketches for portable audiometers and VRA setups and other things that would make good projects for EPICS teams… but that’s another story for another time – perhaps next year.
My cousins, more about friends, and I played Speakeasy Secret Santa last night, at the suggestion of my brother Jason. (Edit: The game was invented by our cousin Mark.) It was fun. Here’s how it works:
- Go to a speakeasy with at least 4 other friends. (It doesn’t need to be a speakeasy, technically. But it needs to have a wide variety of good drinks, and speakeasies do. Also, alliteration.)
- Everyone pitches their IDs into the center. One person shuffles under the table and hands everyone an ID (also under the table, reshuffling if someone gets their own ID). You are the Secret Santa and will order a drink for the person you draw.
- Go around the table and have everyone briefly state their drink preferences. (“Sweet and not medicinal.” “I love bourbon.” “Girly drinks.” “l don’t like wine, but I love dark malty beers.”)
- Order for your Secret Santa.
- When the drinks arrive, go around the table again and read out drink names and descriptions while others guess who the drink is for.
- Then go around the circle one last time, with each person presenting the drink to its final recipient.
Will play again. Also, I learned that my brother really likes bourbon. (And whiskey, particularly of the Japanese sort.) Good to know.
Short version: I’m looking for someone to take over sponsoring Deborah, drug a Zambian child with disabilities who is receiving care from Special Hope Network.
Longer version: Most people reading this blog know that I narrowly missed growing up as a disabled child in the developing world. (I am profoundly deaf, and my family is from the Philippines.) Growing up as a disabled kid in the developing world sucks. There aren’t resources to support you, so you don’t get the therapy you need, and have virtually no chance of being educated. Culturally, you’re likely to be seen as not just a burden, but a shame to your family — your very existence is seen as punishment, clear proof that a close relative has done something horribly wrong. Fathers abandon their families to avoid this shame. Mothers keep disabled children confined inside the house at all times for fear of it. There is no witness to society that your life is worthwhile — that your life even exists. You get an entire society who does not know how to deal with a person with a disability, because they’ve never seen a person with a disability, never watched someone else interact with them with graciousness and dignity.
Special Hope is a small organization that works in Zambia with the most marginalized of these kids — those with severe intellectual disabilities. It started with a family who left their comfortable lives in America and moved to Zambia to work and live as a family — who happens to have 3 kids with Down’s Syndrome. After noticing their kids were the only disabled kids they ever saw outside, they asked around and realized the others were being shut in at home — and decided to minister to those kids. They placed themselves right in the center of the poorest neighborhoods, so caretakers don’t need to spend precious cents on a bus ride. They teach siblings, parents, and grandparents how to do physical therapy with the children at home. They feed them (both the kids and the caretakers). They teach these kids whatever they can learn — singing, dancing, the alphabet — kids who would never otherwise set foot inside a school. These families meet other families with special-needs kids for the first time, and learn that they’re not alone, and that their child’s condition is not divine punishment. Most of all, they witness that these kids and their lives are worthwhile, and that these kids are loved.
I met Deborah during my trip to Zambia with Purdue’s audiology program. She was about 3 years old then, sitting on her mother’s lap — a young woman close to my age. They were fairly new to Special Hope, but Deborah’s mom was joyful at her child’s progress, and determined to learn and do whatever she needed to help her daughter — now that she knew she could do something, which filled her with hope. As I followed them into the physical therapy portion of their day, I remembered a photo of my mom coaxing 3-year-old me through physical therapy after I came out of a 7.5-week coma. And when I got back to America, I signed up and started to sponsor Deborah out of my tiny grad school stipend.
Two years later, my tiny grad school stipend has gotten (significantly) tinier, and I need to taper off my sponsorship — but I didn’t want to just quietly drop and run. So in my letter to the Special Hope folks, I promised I’d try to spread the word and ask if someone might be interested in picking up on my monthly $35 contribution for Deborah. They’re a small organization, and cash flow is crucial — and these folks make every dollar count. $35 gets Deborah nutrition, medical care and physical therapy, school for her and education for her family on how to love a special-needs child, and sets her up to do the very important work of advocating — in her own tiny preschool-child, simple-witness way — for a better world for everyone, including people with disabilities.
If this sounds like something you might be interested in doing, head to the Special Hope Child Sponsorship Page and sign up — let me know if I can help in any way. And thanks for listening.
The wonderful and infuriating thing about friends is that they push you to do things you think are beyond your capabilities. Yesterday, doctor during Abbee And Mel Go To the Gym Time*, visit this Abbee started asking me if I wanted to train for a marathon with her.
Now, Abbee is a former high-school cross-country runner. I have never been a runner; my lung capacity has been constricted by chest-tube scar tissue since I was 2 years old, resulting in a constant borderline-asthmatic peak-flow test score. In other words, imagine being on the edge of a very, very mild asthma attack your entire life. Rolfing (deep myofascial therapy) significantly improved my lung capacity a few years ago, but oxygen is still kinda hard. My temperament is also far more of a sprinter’s than a marathoner’s; I work almost entirely in short spurts and am mildly horrified by the idea of doing anything (except sleeping) for several hours in a row.
But I’m intrigued. I thought my brain was a sprinter’s brain, and so my body must be a sprinter’s body, with fast-twitch rather than slow-twitch muscle fibers. But that’s not necessarily the case. Last year, a kinesiology major watching me lift weights commented that I was powering slowly out of lifts rather than exploding through them, and that my agility drills were quick to plateau — indicating that I might have a distance runner’s muscle composition, if only I’d develop it instead of training for exactly its opposite. “You’d probably be a good marathon runner,” he said.
I laughed, and then I thought about it, and then I laughed again. And then I kept thinking about it. I do want to develop the sort of discipline that distance running would force me to develop — the long-term haul, the consistency, the quiet solitude I find so difficult. I wonder what my limitations are. So I told Abbee I’d train for a 5k with her for the end of the semester, and then we’ll decide more based on how that goes.
This post is to remind me of that decision (although I’m pretty sure Abbee is going to do that anyway).
*One of many “Abbee and Mel Do Action X” formats. Other common formats include “Abbee And Mel Cook European Food,” “Abbee and Mel Pray A Multilingual Rosary While Laughing Uproariously,” “Abbee and Mel Do A Late-Night Diner Run,” “Abbee and Mel at Daily Mass,” and dozens of other little things that constantly remind me how blessed I am to have friends like this.
As I mentioned previously, drug my kids are going to have a mom who’s a scholar and a maker. They’ll grow up thinking that everyone writes their own software and builds their own bikes, and that “stick a microcontroller in and automate it” is a normal solution to a household problem. They’ll know how long it takes to write a book, what “sabbaticals” are (and why mom is so excited about them), and why we throw a massive celebration when one of our friends gets tenure. They’ll walk through grocery stores and be able to tell you how each mass-produced item was probably manufactured.
But I also want to make sure they think other things are No Big Deal, as my friend Sumana puts it. Working with their hands — the dignity of manual labor, the knowledge that just because they’re privileged with education doesn’t make them better than people who aren’t. A skepticism towards elitism. Respect for mastery and skill, no matter what its form. They’ll grow up seeing, discussing, and working against racism, sexism, classism, ablism, homophobia, ageism — discrimination in all of its forms, because social justice demands that we see and appreciate the infinite worth of each person. I want them to recognize and honor the dignity of those who may be different from them, disagree with them, perhaps even hurt them. I want them to know that doing this is very, very hard, but it’s the good kind of hard that’s worth trying your hardest at.
I want them to read and think and calculate, but I also want them to know the physicality of human experience — not to get stuck inside their brains, but to move through life with their entire bodies, and to let life move through their entire bodies, tackling tumbling and dancing and running and climbing with as much gusto as they tackle books. I want them to experience the bigness and the beauty of the world; so many languages and cultures, how precious it is to have the opportunity to travel, and how material poverty is the least awful kind (compared to intellectual, emotional, social, or spiritual poverty, at least). I want them to never be hungry, but I also want them to know that they are not enslaved by their hunger, and that there are worse things than going without food.
I want them to know where food comes from, and how to prepare it, and how to clean the kitchen afterwards, and how to bring breakfast in bed to their parents. (This means learning to make good tea, coffee, and smoothies early on, and learning what “lactose intolerant” means, because their genes will be at least 50% Asian). How to be kind to animals, gentle with the earth, loving towards one another, and patient in communicating (especially with their deaf mom). How to perceive and pursue the mystery that underlies reality — the practice of how one pursues growth as a human being made of and for and from love. (I call this “Catholicism,” and think of my faith practice as a sort of gymnasium for getting Better At Love.) The joy of giving.
But in the end, they’ll also come from a very human mother (and a very human father), and we’ll mess up time and time again. I want them to see that even professors mess up, that engineers make prototypes that break, and — more broadly — that human beings are not perfect, but that we are free to choose. And that one of our choices is always to stand up again when we fall down, and try again to walk the path towards everything that’s good.
I’m going to write about something that’s haunted me for a while. I haven’t written like this for a long time, prostate and details in this story will be changed for privacy reasons.
It was last fall or winter — chilly, page but before the bitter cold came. I had stepped into the street to wait while several friends were finishing their shopping. One of those friends — I’ll call her Alex — was already waiting outside. Alex is the young, heart excited type; happy with everything, friendly with everyone. This time, Alex was crouched on the sidewalk talking with an older woman who had a battered backpack, a cardboard sign asking for money, and a paper cup with coins she’d been tossed. She introduced me to the woman — I’ll call her Lisa.
Lisa was about my mom’s age. As we talked, we learned she had kids about my age, and grandkids. Hadn’t seen them in years. I got the sense there had been some sort of conflict with her kids, and contact broken off — and she wanted to reestablish it, but they didn’t want to be associated with her and the state she was living in. There might have been regret in her voice, but there was also gumption and pride. She was just homeless for a few days — her caseworker had messed up, she said, and didn’t pay her rent, so she had been evicted from her old place. Had to wait a few days to get an appointment about getting a new one. Was sleeping on the streets in the meantime, but it was all right; it wouldn’t get too cold in the next few days.
Suddenly, Alex asked: “Lisa, what size shoes do you wear?”
And then: “Try mine.”
It took some persuasion — Alex finally pointed out that she had other shoes at home, she’d switch to them tonight, she wouldn’t miss this one pair and besides she’d got it at the clearance section of REI for $20 — but Lisa finally agreed. When she pulled Alex’s sneakers onto her feet, she sighed in delight. So nice, to have warm feet without the wind cutting through them, she said. To know that they’ll stay dry.
“I got them last month, they’re not new,” said Alex. ”But they’ll at least keep your feet warm.” Alex pulled Lisa’s shoes onto her feet and wiggled her toes experimentally — you could see her socks poking through the soles, which had been worn completely through in several places. Alex laughed, but I grimaced; I’d worn shoes down like that, back when I couldn’t afford new ones, and walking through the cold, wet streets that fall had become a constant hidden reminder of that poverty. Not being able to afford warm feet.
We asked Lisa to be our dinner guest that night. Nothing fancy; student-budget food-truck fare, something where we could afford to say “order whatever you want, take as much food as you can.” She asked what we were doing, and I told her about school, and she said good, stay in that, complete your studies. She said she wished she could go back and learn so many things, but it was too late now; there was no time left for her.
No, I told her. Not too late. Plenty of older people go to college; there are scholarships and grants, and if she wanted, we could help her find one to apply for –
Alex left for the restroom in the middle of my diatribe. Once the Young Excited Happy Person was out of earshot, Lisa pointed at her plate, which had been hardly touched. “I can’t eat very much,” she said. “I’ll take this home, but you’ll notice I have a hard time eating.” Indeed, I had noticed that Lisa had been occasionally silent and still along our walk to dinner, and wondered out loud if that might be pain.
Lisa glanced around to make sure Alex wasn’t back yet, and dropped her voice. “I’m sick,” she said. “I really have no time left. The doctors say I have less than a year to live, maybe even 6 months.” I don’t remember what it was, but it was somehow stomach-related. Cancer, maybe. “So I really can’t go back to school,” said Lisa. “I wouldn’t live to finish a degree.”
Alex came back, and we abruptly switched our conversation to happier topics — her grandkids, the upcoming holidays, what Alex and I wanted to be when we grew up. I noticed Lisa tucked her food carefully into her bag, largely untouched except for a few spoons of rice. We bade each other a good night, gave Lisa a big hug, and off we went; Lisa to wherever she was sleeping for the night, and us to the discount department store, at my insistence. I told Alex in no uncertain terms we were going to put another pair of sneakers on her feet, right now, because those old shoes were making my feet cold just looking at them.
Alex looked happy, running through the shelves of marked-off discount shoes, looking for the cheapest sneakers that would fit her. “Look, I only had to wear those shoes for what, a mile?” she laughed as she peeled the soggy rags into a garbage can. “And now Lisa has good shoes. They’re only a month old, and a good brand — they should last her for at least a year.”
She’ll die before those shoes wear out, I thought, but didn’t speak that thought out loud. Instead, I smiled and paid for Alex’s new shoes. “My treat,” I said. “I know what crappy shoes feel like; besides, you paid for dinner, so we’re even now.”
Alex still wears the shoes I gave her. They are starting to wear through. She showed me her shoes recently, and joked that they were turning into Lisa’s shoes; there aren’t holes yet, but the soles are wearing thin and smooth and it’s only a matter of time.
And that’s when I remembered. It’s been nearly a year now, and I wonder: how is Lisa? Is she still alive? If so, are Alex’s shoes still keeping her feet warm? Or maybe Lisa and the doctors were right; she’s dead, maybe months dead from whatever sickness was killing her, and those shoes were the last shoes that she wore. Or maybe — I don’t know. But I realized that Alex’s shoes were what reminded me occasionally of Lisa, and that I might not remember Lisa once those shoes were gone.
So I decided to write this, because I want to remember: I want to remember the woman, and the evening, and the conversations, and the dinner, and the shoes — the spontaneous act of kindness, and the warmth of dry feet, and a reminder to myself to never take comforts for granted (I’ve been able to afford dry shoes for years now). I told Alex, and she’s ok with me writing this; she was sobered when she heard of Lisa’s illness, and we prayed together that Lisa might find peace somehow, wherever she is now.
“Peace and dry feet,” Alex added.
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The goal of every Hacker Schooler is to become a “better programmer.” Given that I last wrote on Test-Driven Learning, apoplexy I feel almost obligated to ask: “what does that mean exactly, treatment and how could you assess yourself on it?” (Another wording, from Dave’s post: “What qualities of being a ‘good programmer’ could you aim for, and how would you know if you had them?”)
There is no one-size-fits-all assessment that would work for every Hacker Schooler — everyone has such different interests, learning styles, experience levels, and a wide splay over every other type of spectrum imaginable for learning programming. (Typing speed. Language preference. Shoe size.) Making a single pre/post test and foisting it on everyone would (1) fail miserably at assessing anything and (2) work against the intentional self-directedness* of Hacker School.
So during my Hacker School residency, several Hacker Schoolers and I sat in Hopper (the big glass-walled room at the end of the space) and brainstormed on exactly that question. Here’s what we have for starters, totally unsorted and only edited for spelling and clarity of terminology.
- length of Hacker School bio page
- number of git commits
- number of “merits” (a currently nonexistent, hypothetical arbitrary credit) given by other students
- list of acquired skills
- contributions to FOSS
- number of pairing experiences
- lines of code per project
- list of completed projects
- total lines of code blogged
- number of roadblocks overcome (subjective)
- happiness/satisfaction (subjective self-report)
- lines of code written without needing to consult external references
- how fast can you make this deliberately slow code?
- Project Euler time trials
- number of job offers
- number of friends referred
- ability to explain concepts to novice coders
- number of people helped
- understanding of software docs
- number of blogs
- hackathons attended
- number of followers in (git) repositories
- time wasted browsing other stuff
- length of time paired
- number of presentations
- ability to improve own code
- usefulness of programming blogs
- refactoring time trials (rewrite code to run faster, as fast as you are able to rewrite it)
- how many lines of code produced
- number of projects done as an individual vs collaboratively
- assessment from peer partner
- ranking of comfort with (programming) languages
- number of times you had to use a search engine to complete a task
- cups of coffee
- number of tweets on technical topics
- how many ways you can think of to code the same function
- total time spent with facilitators
- presence of test suites with code
- number of keystrokes
- hours slept
- debugging time trial
- results of code reviews
- number of git commits
- number of presentations delivered
- number of seminars attended
- number of seminars given
- number of new tools learned
- reading pseudocode
- ability to follow directions
- writing a program from scratch
- alum application reviews vs facilitator observations
- average length of (git) commit
- number of alumni contacted
- independent rating of CV by HR people
- can someone else independently compile & run your project?
- on a scale of 0-5, how confident do you feel as a programmer?
- number of interviews
- frequency of git commits
- number of questions asked of residents and facilitators
- frequency of code revision
- how many errors can you spot and fix in this deliberately broken code?
- time to fizzbuzz solution implementation
- how many technical words on this list can you explain
- grade on open courseware CS class final exam
- Zulip (Hacker School internal chatroom) lines with ? (question marks) in them
- heart rate/stress response during Jess McKellar’s most technical talk
Further ideas quite welcome.
*Tom also pointed out that a pre-test would “prime” students to learn certain things and could dramatically affect their pathway — for instance, if the pre-test had a bunch of CS theory, students would think “oh, I should learn CS theory!” and veer off in that direction, which could be positive or negative (but would most definitely skew the study results). He wondered if we could make pre-assessments that “primed” for certain… habits of mind, for lack of a better term, rather than content.
[Trigger warning: brief mild depiction of depression/suicide imagery from the past.]
Looking just now at a Christmas 2013 picture of me in my (then) brand-new dress, neurosurgeon I realized I’m at an interesting point in terms of figuring out what “authentic femininity” means for me personally. Specifically, read more I now feel like at some point in my life, side effects I will say something like “you know, I used to hate wearing dresses/makeup/dancing/whatever and felt really awkward around them,” and someone who knows me pretty well will be surprised: “YOU used to HATE dresses? What?”
 not necessarily this set of nouns; it’s still too early to see how this might shape up. Part of my definition of “authentic femininity” sees physical vigor as totally badass and loves running and around in a sweat-soaked hoodie and muddy cargo pants (that somehow permit a full range of motion in the hip and knee).
This point may not come for many, many years. But I now believe it will come, and that feels weird in (what I think is) a good way.
I used to be like this for computers and technology. You know, I used to — well, not hate computers, but certainly I used to feel awkward and incompetent around them. I thought I’d never be a decent programmer, I thought a breadboard was a baking implement, and I certainly didn’t think I was going to engineering school. I remember telling my parents in high school “well, the first decision is easy; I can scratch everything that’s not liberal arts off the list of schools I’m looking at.”
And then there are the other things that I believe I’m going to say someday, if I’m not already saying them now.
You know, I used to hate being deaf, and felt really awkward about that.
You know, I used to hate needing to have a body, and felt really awkward moving, and wished I could just become a robot or computer program so I wouldn’t have to deal with things like muscles and breathing. Dancing? Ahaha. Ha.
You know, I used to hate silence and solitude, and felt really awkward and like I had to get the hell out of it as soon as possible.
You know, I used to hate the thought of getting married and settling down and being a mom and maybe not working for a little while so I could stay with my family, and felt like I should avoid the slightest possibility of that at all costs.
You know, I used to hate having to take time off to sleep and rest and relax.
You know, I used to think I’d never have or want any close female friends. You know, I actually used to think I’d never actually have friends at all.
You know, I used to hate having to be alive. There was a period — an extended, multi-year period — in my preteen and teenage life when I would beat at my curiosity with Small Mel Fists of rage, because the question of “what’s going to happen next?” was by far the strongest argument for not throwing the whole damn thing away. It wasn’t being “lifted up on the wings of hope in the midst of despair” or anything picturesque like that. It was more like being dragged unceremoniously over a black pit by a monofilament that cut into my gut like a knife and whooped annoying things like “BUT MAYBE THE FUTURE IS SHINY!” as I flailed at it with whatever cutting edges I could find, cursing it for not shutting up and letting me drop already.
You know, I’m glad it didn’t.